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The Sjogren's Syndrome Survival Guide, by Teri P. Rumpf
PDF Download The Sjogren's Syndrome Survival Guide, by Teri P. Rumpf
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About the Author
Teri P. Rumpf, PhD, is a psychologist in private practice specializing in treating patients who suffer from chronic illness. Rumpf knows firsthand the challenges of living with Sjögren’s syndrome. She has published numerous articles on living with chronic illness for both the Sjögren’s Syndrome Foundation and the Scleroderma Foundation. She lives in Newton Highlands, MA.
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Product details
Paperback: 240 pages
Publisher: New Harbinger Publications; 1 edition (March 2003)
Language: English
ISBN-10: 1572243562
ISBN-13: 978-1572243569
Product Dimensions:
6 x 0.5 x 9 inches
Shipping Weight: 8.8 ounces (View shipping rates and policies)
Average Customer Review:
4.3 out of 5 stars
44 customer reviews
Amazon Best Sellers Rank:
#92,837 in Books (See Top 100 in Books)
If you have Sjogren's, this is a must buy! I was so sick of trying to get information about this topic. This information assisted me in stepping up taking care of myself and addressing my own medical care. I was so sick of people saying "Oh, thank goodness it's not Lupus". Now I have information. Wish the book addressed alcohol use and Sjogrens. I have found it to be a HUGE cause of my flares and joint pain.
I found this book to be very helpful. I was diagnosed recently. It was not hard for me to undwrstand though some reviews complain of that. I think it depends on how many doctors you have seen and how much yoy understand your diagnosis as explained by your doc. The only complaint I have is that I presented with vasculitis and severe autonomic dysfunction. Dysautomia . POTS postural orthostatoc tachardia syndrome. I Don't feel there was any real info about that or why it happens. Also many think this disease is for old woman. I am only 39. Another common misconception is that it only causes dry eyes and mouth, making others who never heard of it say "that's not so bad". Everybody is different and this disease is veru serious for some of us. My quality of life has been drastically altered by sjogren's. I think more info about those things would be beneficial. I need a cooling vest year round as I am unable to maintain my body temp. I have hypwrhidrosis like a human sprinkler. Was hoping there would be more info pertaining to me as my dry eyes and mouth started in just the past six months. This book kind of makes it seem as if that is one of the first symptoms. We are all different. And buy the way to any family or friends reading it, just because we Don't "look" sick like a chemo patient does not mean we Don't feel like death warmed over. Just some fyi.
I have enjoyed reading others feelings and thoughts on this devastating disease. It is nice to have somewhere to go to compare symptoms and problems and find possible solutions
This book is definitely worth the read, but it would be great if they would release an updated version. I knew when I bought the book that it was several years old, however, it would be helpful to have some of the research and treatment information be refreshed.
I knew most of the information, but a few things I did not know, so worth getting the book.
This book was delivered as promised via Amazon.com. I could not put the book down for a few days until I read it. It told me everything I wanted to know about Autoimmune diseases and more, and gave me much more appreciation for my Rheumatologists Doctors Philip Sedrish and Marielisa Sedrish at Gulfcoast Rheumatology at Slidell Memorial Hospital. They have been doing everything like clock work with me and I have been a very trying case for especially for Dr Philip Sedrish. These doctors are definitely experts in Rheumatology and all the other Auto-Immune Neuromuscular and Skin Diseases such as (RA, PM, DM, IBM, Sjogrens, Scleroderma, Lupus, ALS, etc...) that go along with their specialty. They referred me to the best specialists: Dermatology - Dr Eric Tabor; Cardiology - Dr Ignatius Thomas; Pulmonology - Doctor Dennis Dale and Doctor Janine Parker; Opthamology- Dr David Slagle; Gastroenternology - Dr Anthony Albright. These doctors all work well with each other and me to address all my symptoms associated with Dermatomyositis, Sjogrens, and Psoriasis. Thanks to these doctors, I have not had to drive 100 miles a trip to the MDA Clinic at Children'sHospital in New Orleans or even further as may others end up doing.Thank you to the authors of this book and my friends from The Myositis Association, Polymyositis and Dermatomyositis forum.I recommend this book to anyone diagnosed with a Auto-Immune Disease and associated Cancer.Bill MorellDiagnosed with Dermatomyositis, Sjogrens Syndrome, and Psoriasis.
This is a good book for readers who need basic information about Sjogren's Syndrome. For those who have read the information on Internet sites such as Johns Hopkins, NIH, and Mayo Clinic, there isn't much more to add to that free medical information. This book does have useful information about dealing with the emotional consequences of Sjogrens that those sites don't offer, and it may be helpful for those who seek guidance in that area. The type face is fairly large and easy read, so great for senior readers. I thought much of the self help advice to be basic common sense and things the Dr has already suggested. There is a resource section with useful addresses, but as the book is now 5 years old, the addresses and phone numbers may need updating.
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